Tuesday, October 28, 2014

Current Events......

I published my last post even tho it wasn't up to date, just to fill in the first half of the year.  So much has happened since then.  I'll try to do my best to get you filled in on things since then.

I went to Cleveland at the end of August.  We had lots to discuss with my stomach and intestines getting worse as far as the motility.  My Dr. felt it was time for me to see an intestinal transplant specialist.  He spoke highly of the Dr. he would be referring me to.  We discussed the options that I have. My Dr. said he has 2 patients with simular stories to mine and told me how good they are doing since they have had surgery. I asked if he would give my name and number to them so that I could ask a few questions.   He shared my info with one of the patients and within an hour after leaving his office I had a phone call from her.  She was very sweet and answered all the questions I had for her.  

My Dr. feels like this is the next step - choice 1 - to have some of the intestines removed, and choice 2 - to have a multi-visceral transplant.   He put in the referral for an appointment with the specialist. With many phone calls and lots and lots of faxing of my records I was able to get an appointment set up.  It took a bit to get it all because they set me up for testing and the appointment both while I was out there.  I had an appt on Oct 13 to see the specialist and had some difficult testing set up to be done while there.   I had been praying that some of it would be cancelled due to the prep for some of it.   Not quite sure how I was expected to drink a bottle of mag citrate and a bottle of barium...hummm.  Monday started with having some blood testing done.  That "some" ended up as 30 vials of blood taken.  I am very thankful I have a central line that they were able to use.  After that I had to go to another building and have a CT of the abdomen and since there was some down time in between, the kids and Shane ate some lunch.  We took the kids with so that we could spend some time together as a family and do some things while there.   They had fun while eating their lunch watching the construction in the parking lot.   I got to meet my nursing coordinator, Shatina, at the appointment.  We talked on the phone many times getting the appt set up and it was nice to be able to meet her in person.  She is super sweet!  We went over my medical history, then I met with one of the Surgeons in the office to review it.  He was really nice and informative on everything.  Then I got to meet Dr Kareem.   He has a big heart.  He went over the the 2 choices and we both felt it would be best to go with option 1 first. He is not for certain how much of the intestine he will remove.  He knows the large intestine will go but not sure on how much of the small.  He gave me a hug and reassured me that he will do his best on getting me back on track.  Both he and my GI Dr. feel like I am strong enough for the surgery and that having the surgery will help with the pain  help me feel some better.  He also wanted to see the kids, so Shane went and got them from the waiting room and brought them back.  He gave the girls a kiss on the forehead and told them he was going to do his best to get their Mama feeling better.  He also cancelled out all the tests except for one- an esphogeal manometry test.  Before leaving I signed my surgical consent for Nov 4.  That ended the big day for Mon.   On Tues. I met with the nutritional support team for my TPN and then had an appt with my GI Dr.  We basically discussed Monday's appt and what Dr Kareem had had to say and that was my day. On Wed I had the wonderful tube down my nose for the manometry test.  Glad that was no more than 20 minutes or so of testing.     We started for home Thursday morning but not without stopping for the birthday girl, Kailey.  She turned the big 11.  We surprised her with tickets to the Blue Gate Theater to see the play- Josiah for President.   It was a really good play and we all enjoyed it.

We are getting things packed and ready to go for Cleveland.  I will be in the hospital for a week and then in a hotel for 2-3 weeks before I can come home.   We decided the kids would be better if they stayed home.  They will be able to do their schooling still and be at home and in their own beds. I'm trying not to pack the house as I'm getting ready.  Just don't want to forget any of my medical supplies and things I would need while I'm in the hotel.

The kids are doing well.  This is Matthew's first year of homeschoooling and he is doing great!  He is working hard!:) The girls are doing good in their studies also.  Matthew and Kailey have been working extra to get ahead of the planned assignments so they won't be behind when I come home. They all have been a big help to me in getting things together.  What a blessing that these 3 kids are to me in so many ways!!  I love them lots and will miss them bunches while gone.

I have really enjoyed the fall this year.  The weather has been great and not too many days of cold weather.  I have enjoyed looking at all the beautiful colors in the trees.  Some are so breath taking at how vibrant they are.  God is the Greatest Artist no doubt!  We have gone to a couple orchards this year and the kids have enjoyed some apple cider donuts.  Kelsey had the experience of a goat chewing the pocket on the back of her skirt.;)

The Lord has really blessed Shane's business.  He has been able to expand and get more of the building.  He did the Homestead parade again this year.  Dad and Mom Pennington have moved back home from Texas to help Shane with the business.  What a blessing for Shane to be able to leave and be with me and not have to close the shop down each time.   God is so good!  He is our Provider.

I give God all the glory and praise for the great things He is doing!  He is everything we need and more than enough!  I can't thank Him enough for everything He has done and every time He has brought me through.  He is my peace, joy, comforter, and healer.  I'm so thankful my life is in His hands and that He is my great Physican.  If it wasn't for Him I would not be here today.   He is doing great and wonderful things.  I'm so glad that He walks with me each step I take.:)

I want to thank you for all your love, support, and prayers!  I feel like this post is all over the place-hope it makes a little bit of sense.  You guys have waited patiently as you have texted and emailed wanting to know what we had found out at Cleveland.  I'll try to a better job with my updates.  Shane will try to keep you posted until I'm up to it.

Love Ya

Monday, October 27, 2014

It is way past time for a much needed update from me :)

I am sorry that I have not done an update since January!!  The time has flown  by way too fast for me. Thank you to those who have sent texts and emails checking on me in the meantime as you've patiently waited for me to do an update. :) I'll see if I can highlight a bit of what's been going on.

I've been to Cleveland Clinic in Ohio two times and have made some phone calls  there in between:) They have made some changes in my medications.  They continue to change my TPN according to what my bloodwork shows and to help increase my weight.  I will continue to see my Specialist there every 3 months.  I was there in May trying some new meds.

I had to have my Hickman line changed out because one of the lines broke as an outpatient.  :(  I still get stuck to have bloodwork done, by my choice, because I don't want to have any line infections.  I know there are times they have to draw off it.  As I was getting ready to be taken back they premedicated me with Benadryl and I ended up having hives and itching immediately.  They rushed me back and I was given something to counteract it.  Other than that, all went well.  I am thankful for the line and that I'm able to do the TPN, as I wait for my miracle to come :)


My foot was still hurting so I told my foot Doctor at my appointment,  He did an XRAY and it showed that it was healing and I was told to come back in 6 weeks to recheck it.  When I went back, it wasn't hurting any worse but still hurt and the XRAY showed it was fractured again.  Not sure if it refractured or was never totally healed.  Anyway. the 2 choices were.... a cast again for 6 weeks or surgery to remove the bone.  I opted to do the cast.  The girls had seen a lady with a pink cast on and wanted me to have that so I gave it a try :) They lit up with smiles when Shane brought me home.  When  I fractured it back in September the doctor explained that with the bone being fractured it may not get adequate blood supply and the bone could die.  Since this was another 6 weeks in the cast I was a candidate for a bone stimulator.  A rep from the company came and got me all hooked up and showed me how to use it.    I had to call Medtronic to make sure it was okay to use with my gastric pacemaker.  With it being so far away we were given the go to use it.  Having to sleep with a cast and stimulator on at the same time took some getiing used to but we did it.:)  The XRAY showed that the bone had died even with doing the stimulator and cast.  What a disappointment but at the same time I was ready to get back on both feet, so in May I had surgery to have the bone removed.  The plan was to stay overnite and be discharged the following morning.  I was alert when I went in and as they were prepping me, the anthestelologist gave me ketamine so I was in "twilight".  I said a few times to the anesthesiologist I'm awake and that my calf hurt.  It was only because the tourniquet was there.  I was fully awake by the time they were casting it and wheeling me to my room.  Ketamine is one terrible med!!  I felt like I was buzzing from dream to dream in a very fast pace!  Any type of light made me feel worse, so I laid in the room for a few hours with lights off as much as possible.  I was super nauseated and my mouth was very numb and tingling from an allergic reaction.  I guess when they gave it to me I reacted with a rash up my arm and with my mouth numb and a thick tongue.  I am going to have to make an appointment with an allergist due to all my allergies I've been having to medications.  I carry an epipen in my purse and have one at the side of my bed - orders from the Dr in Cleveland.   I am recovering from the surgery pretty well and starting to put weight on my foot again:)  I haven't walked on it since February but step by step and with physical therapy 3 times a week I'll be back  in working order here soon.  The foot doctor and all the Resident Doctors have been wonderful thru all of this.

Cleveland asked me to see a Neurologist for a few things so I set an appointment up in March to see one.  He did some tests due to some of the meds that I am on.  It showed negative for seizures and Cleveland wanted it ruled out from the meds so I had to be admitted to ICU for a 3 day stay with my Sweet Husband by my side to monitor for any of the signs.  I had a hard time being admitted there and not having a line infection, I mean this is where super sick people go- you don't have a private bathroom, privacy, and quietness. I tried my best to talk them into another area but the only 2 places they do the testing is Pediatrics and ICU and since the peds was closed I didn't have any choice.  I do have to say they went above and beyond to make it quiet and give me some privacy.  It was very hard being hooked to over 20 some electrodes to my head for 3 days on top of all my other health issues.  The neurologist is very nice and I am thankful to report that I do NOT have any seizure activity at all.  He feels like it is all metabolic issues and that there were no signs of anything bad signaling to the brain! Thank you LORD!!!!!  That was a BIG answer to Prayer for me!

I have had a few stays in the hospital the past several weeks.    God has been very good to me and I am so blessed!!  I am very thankful for answered prayer and things that could have been some major issues, He turned around for me.:)  The last stay was last week on my birthday.  I woke up with a fever and nothing I did brought it down so after a bit I decided it was best to go to the ER.  I was told I would be admitted due to the fever and the line tested for staph and sepsis, but before I was moved to my room my fever broke.  I felt just as I would with a line infection but God just changed it all for the better and it was a viral infection instead!  I was able to go home the next day mid morning!  

I'm still going to the hematologist to help the anemia.  My iron is up and down so we are still trying to keep it under control.   If you are able too - donate blood!  I know that a lot of hospitals do blood drives.  :)  I know it's not fun to do-but your pint of blood can help 3 people:)

I can't thank you enough for all your prayers, cards,texts, calls, and emails.  What a blessing that is to me!!  So thankful that we can take our needs to God in prayer and HE does listen and He does answer prayer.  No it's not always in our timing or the way we expect it to happen.  I am so blessed to have family, friends and  loved ones who care and support us.  So thankful to God for all HE has done for us thru all this!!   I am one very blessed person and so grateful for all He has done and blessed me with!   It doesn't take much to look back over the past 5 years and see what God has done for us and how far He has brought me thru all of this!  I am still here today and that in itself is a miracle.  :)   I know things could be better but it doesn't take much for me to see what it could be also.


I am blessed by my awesome husband and my 3 wonderful kiddos who always bring a smile to my life.  Mat
thew is finished with 3rd grade and ready for summer break!  Kailey is just about done in the next week or two and Kelsey has a while yet due to her laptop breaking down and having to redo  so much.

Tuesday, January 7, 2014

2014- It's here! :)

 It's crazy to know that we are already in 2014!  Time seems to be flying by too quickly!  I have fallen behind on my updates and trying to play catch up.  I did have a post typed out and ready to go back in October, but we had issues with our internet so it never got posted.  I did post it back on January 1st so I wasn't having to do so much backtracking. :)

I think I'll try to pick up the pieces of some of our happenings from November and December.:)  We took a trip at Thanksgiving time to Texas to be with Shane's parents.  We had a good trip there and back but I can't say it was warm while we were there. :(  On one of the days we were there, they had freezing rain.  We had the chance to drive downtown Dallas and see the beautiful Christmas lights.  We all had a wonderful time together for Thanksgiving.  So many things to be thankful for this year!!  God is so good to us!  Blessed beyond measure!   I am so thankful  for the small and simple things and for that which is big too !  To God be the glory for what He has done and is going to do!

December was a little busy, but oh how I enjoyed it!! Last year I was in the hospital for 2 stays for about a week each time and then sent home at the last of December to go home and pack for Cleveland and have a week of hospitalization there.  Needless to say I wasn't able to enjoy Christmas as I wanted to!  I enjoyed being able to do a little shopping and be able to pick out a few gifts this year though.  I sort of dreaded being able to decorate knowing with the flood back in May took a lot of my decor....but in pulling out the 2 rubbermaids we found our ornaments and some of our decor.  I was so excited to know that I still had some decor that I was able to salvage and use. :)  I enjoy sitting in a room glowing in lights and listening to Christmas music.  I am so thankful that as a family we know the true meaning of Christmas and that it's about the presents but is about His Presence.  I enjoyed being with my family and friends and soaking all the true joy of Christmas.

I took the kids up to the local hospital OB department Friday afternoon to let them see the room they were born in and that we stayed in afterwards.  Neat to be able to show them the nursery and the scale to weight them, and to see the room that Matthew and Kailey had to be in after discovering they had breathing issues.  It was neat to introduce them to some of the nurses they had.   The kids enjoyed it, along with the cake, punch, baby shirts, and drinking cups. They also had all the baby albums from the pics they take available to look at.  They had fun looking up their pictures of themselves.  Sad to see the OB department close down. It was neat being able to walk down memory lane with them and let some of the nurses see just how grown our children already are.

Enjoying being inside and keeping toasty warm while its freezing cold outside.  They cancelled school for 2 days and its been nice to have all of the kiddos all together before routines all begin again.:)  I am thankful for a warm home!!  Enjoyed the extra time to play a few games with them also.  It's been nice not having to bundle up and brave the brutal cold weather!!:) I know we are a ways from spring time, but I am ready for some warmer weather to come.

As I think upon 2013,  there are some lessons I have learned through it and has opened my eyes to some goals I would like to reach this year for myself and for my family.  There were some rough times but God was with us every step of the way whether great or small.  I am so grateful for His love for me and for His blessings.  I don't want to fail to give Him the glory for all that He has done.  I want to be a vessel that He can use.  I am believing Him for some great things for 2014!  

Praying that you all have a wonderful New Year!  Take time to look at the blessings of God each new day!  If you have to keep a tablet and write it down, it's neat to look back upon.  Rejoicing in those things that are both great and small.  May you heart be full. Can't help but think of the song..."Count your blessings name them one by one, count your blessings see what God has done, Count your blessings name them one by one, count your many blessings see what God has done."  Thank you for your cards,emails, text, support, hugs, love, and most of all PRAYERS!  I am a very blessed person!!!!

Love- Jamie

Wednesday, January 1, 2014

Lots of catching up to do...

Not exactly sure where to begin...it's been so long.  I am sorry for not doing an update sooner.

Wow, a lot has happened since my last post!  I'll do my best to give you a brief summary of what we have done since July, or at least try to catch you up a bit. In August, we took a trip to Texas.  Had a fun and relaxing time with Shane's parents,Uncle and Aunt, and cousins.  Matthew got a real pair of cowboy boots.  He looks like a  pretty handsome lil feller in them.   We came back home with our running shoes on!  The kids started school a week after we got home so we had our mad dash of fighting thru the isles of getting school supplies.:)

Matthew is in 3rd grade, and is  having a good time.  His favorite subject hasn't changed since Kindergarten-P.E.  He is every bit a boy and loves being outside and playing.  He enjoys any bug, spider, cricket,praying mantis, lizards, frogs...and the list is still growing.  I wouldn't want it any other way. :)  The girls started a few days later than Matthew.  It is a  big adjustment for  our Fourth grader-Kailey with it being her first year at home, but she is doing well and keeping up with her studies.  She does miss her classmates, but we're going work on writing letters to help keep in touch  a bit. Kelsey is our Seventh grader and doing really well with her studies.  Seventh grade!!! Unbelievable !!! They are learning to work as a team and help do little things around the house.:)

Shane is keeping busy with his car detailing.  We thank the Lord for His provisions and His many blessing! He was in the Homestead parade with a before and after car and then I drove the Suburban. It was lots of fun!!!  If you didn't  get to see it you missed a good one!!  Couldn't believe the huge crowd of people that were lining the streets.  We went thru over a hundred  dollars worth of candy and had a few pieces to throw by the time we got to Peru and Main Street.  You can check it out at his facebook site...www.facebook.com/shanesshineshop

Kailey had asked last year to go in a helicopter ride. The line last year by evening time was long and it was getting dark so we asked her to wait till this year and go up in the afternoon and see the town from the sky.  She went up with Shane and a friend of ours from church.  She was full of smiles when she got in and was in the front with the pilot .  When they landed and she got out she was still grinning and said that was fun and I want to do it next year, too!  Matthew said he wants to try it next year, too.  Kelsey has no desire to be up in the air and is very content to just watch them.  Shane said it was really neat and not bad being up in the air.  The pilot circled around the house a few times to let them get a good view of it.  Shane took a few pictures in the air and it's so neat to see the corn fields and some aerial views of the town and our neighborhood and house.  She had a birthday and turned the big 10!!  I need to put bricks on these kids because they are all growing way too quick!!

Iv'e had a few doctor appointments to say the least since July.  I have finished the 39 unit of blood since February.  That is a lot of blood and I am grateful for those who are blood donors!  I am evermore grateful for the blood of Our Precious Savior who died for me at calvary.  I have been to Cleveland and they are changing out the TPN to try to help maintain my weight.  They want me to keep seeing a cardiologist for the tachycardia and the hematologist for the blood issue. Will continue to see them every 3 months  for a check up.  Back in September I went to get out of bed and when I stood up I had pain in the ball of my foot.  I babied it and walked on it diffrently trying to help it along.  It wasn't any better so I saw the Dr for it and he thought that maybe it was gout so he treated me for it and had me do a blood test.  It came back negative for gout and made a refferal to see a foot specialist just to make sure all was well.  I got in that week and they did 3 xrays of the foot and it showed that the ball of my foot.  He came in and said "so you're treating your foot for gout?"  I said yes and he said it's a fracture and a chipped bone.  He put it in a cast and I just had it reevaluated this week.  They took the cast off and x-rayed it and there is no change or sign of healing so back in the cast for 3 more weeks still no weight bearing.  I never have used crutches before-I have more sympathy for those who use them.  They take skill and endurance.  Maybe with me using them for 3 more weeks I'll be a pro at them:) Ha!  There's no racing using them.  I have been able to keep Shane and the kids laughing time to time as I lean into a wall to catch myself from falling.  MY MY MY!! LOL!! .:)

Fall  has always been my favorite season.   I don't enjoy the chill in the air, but I do like wearing sweaters,  being cuddled in blankets, the smell of candy corn, caramel apples, pumpkin bars, apple crisp, roasted marshmallows, hot cocoa, maple nut goodies, & hot cider.  Listening to the leaves crunch as you step on them. Watching the trees change in color from front porch or going on a ride out in the country enjoying all beauty that fall brings.   We enjoyed the quick trip to Cleveland and seeing all the trees in color there and back.:)  I didn't like the snow that we had on Tuesday.  It was just enough to cover the ground but it sure was cold!  I'm not ready for the white stuff to be coming quite this soon!  Hope this doesn't mean we are in for a bad winter.


Saturday, July 20, 2013

An awaited update:)

It's been a crazy busy summer to say the least!! SLOW DOWN SUMMER!  School supplies are on the shelves and ready to go...but they can wait a bit longer please-I'm not ready to end our Summer. There is still a trip to Texas before school starts and some things to do with the kiddos.  Time seems to just be flying by a bit too quick!  We're sure having fun though!:)

The hickman line is in place and healing well.:)  It was a rough day! The first plan was set and ready and when the surgeon came in and discovered that the PICC had been changed.  It was in the left arm instead of right-His plan was to place the hickman on the left to give the right side a break after having it removed from there.  Since we were using the PICC for the IV meds to help knock me out for the surgery we had to do an IV in my hand.  The nurse got it in and another plan changed-instead of knocking me out completely it was decided to use partial sedation to where I would not be completely awake.  I was a bit hesitant just due to times past waking up through the procedures. Well...I was taken back to surgery, remember getting the meds and was told I was in a good sleep.  At some point I started hitting with my hand that had the IV in it and when they got my hand the IV got messed up.  I don't remember that-I do vividly recall awakening to pain on my left chest where the Dr was working and countless pokes and sticks for the IV.  NOT FUN!  I had a sweet nurse at my head, wiping my tears that were streaming down my face, trying to keep me calm as I could feel the Dr stitching me.  They were not able to give me any meds due to no IV.  They had tried 4-5 attempts and my veins were not cooperating so..no IV was placed.   I was just happy to come home and crawl in my bed and try to sleep off the pain and be LEFT ALONE.:)   It wasn't anyone's fault, but I think it's just best to be all the way out from now on.  I have alot of allergies to meds and don't want any more.  Thankful that God's hand was on me thru the surgery and all is good and well with the line.:)

I had an appointment with the hematologist yesterday.  I have a low hemaglobin so I recieved 2 units of blood after my appointment.  The plan is to get iron infusions for the next 2 weeks and see her in 4 weeks.  If  the levels are not where she would like them, we'll discuss doing another bone marrow biopsy again.  

Trying to stay cool in this heat.   I love the heat but my body doesn't handle it too well.  With Shane doing car detailing I've been trying to keep the house stocked with powerade and gatorade to drink.  The kids haven't been out too long with as hot as it's been.  They did make it to the library for the Summer Reading Program activites.  The helicopter came in last Friday and they loved watching it come in and leave.  We've enjoyed and are thankful for the programs they offer the kids.

Wishing you all a wonderful weekend!  I can't express my gratitude for all your prayers!  Thank you!

Love-
Jamie










Tuesday, July 9, 2013

Clearance for surgery :)

All is well for the Hickman to be placed back into the chest tomorrow.  I have to be there at 7:30 in the morning and go in at 9:30 for the Leonard Hickman to be placed.  Antibiotic is done and no infection in the bloodstream.  Yea!!!  I am ready to have this PICC line out of the arm and get back to some normalcy of things.  It just must be where it is located that it is so tender.  I can't complain too much cuz things could be much worse.  I think my arms and hands have had enough things done to them the past 4 weeks between 2 PICC lines and too many IV's.  Thankful though that I still have access to them and don't have to use the jugular vein.  

God is so good and I am thankful for the Dr's and nurses that He has placed before me.  I pray for them daily that God would guide them and help them.  

Getting ready to call it a night since the morning will come early for me.  For me, 5:30  is when I'm getting into a good sleep.  Please keep me in prayer tomorrow.  I pray that I can be a blessing to someone thru all of this.  God has blessed me beyond measure!  I'll try to update the blog on Thursday.  Hope you all have a wonderful Wednesday.

Love-

Jamie

Monday, July 1, 2013

We made it HOME:)

Sorry for the lack of updates.  It's so good to be back home!  We made it in on Saturday afternoon safe and sound!  Thankful for a safe trip there and back.  We ran into traffic on the way home.  In Peru, there was a single vehicle accident, but thankful for God's protecting hand!!

Well.. where to begin for Friday?  We got up at 6:30am, after going to bed after 1am from the ER.:)  Got ready and packed.  Shane and Matthew loaded the car up and the girls and I headed down to the breakfast area.  They ate, then we all headed out for the doctor appointment with the GI doctor.  He was concerned and seemed for certain that I was facing a blood clot in the right arm of where the PICC line was.  I gave him a hug and said let's just take this step by step and that we'd get thru this.  So, most of the appointment was rushed to get me over to another area of the campus where they were able to do a vascular ultrasound.  Once we were finished with that, we rushed back over to the office where my appointment was to get the results and see what the next step would be.  They came out and said it was cleared for no clot.  That was a good thing!!!!  Thank you, Lord!!:)

They were able to get me scheduled with the PICC team  to change out the PICC line since this one was obviously leaking.  Bad news was...they couldn't get me in until 3 pm.

We left the GI office around noon, found me some chicken broth and Shane and the kids had McDonald's for lunch.  We sat in the main hospital lobby waiting area and there was a young doctor at the piano playing.  What an enjoyment it was!  We watched a lot of people come and go.

The Hematologist I saw Thursday came up to me and complimented us on how beautiful our family is!  He also said he was waiting on a bit more of the blood work to come thru, but what he had back didn't show anything significant.  He said to call his office this week and go over it all.

Around 2:30, we headed to the Dialysis area because that was the only procedure room available for them to use for the PICC insertion.  It took about an hour to get it all done, then we had to race over to the Endoscopy area.  The GI doctor said no more Vancomyacin with the reaction I had in the ER.  He said the next time I would have it would be worse so no more vanco for this girl.  He wanted me to try Cubicin before leaving and be monitored for any reactions.  The Endoscopy area was able to keep me for that, so we got there and was ushered back  to a bed only to find out they were waiting for the anitbiotic to get there from another pharmacy that was not theirs.:) :)    We waited patiently and they allowed Shane and the kids to come back with me since it was the end of their day.  About 15 minutes or so passed and my nurse came towards me carrying a big box saying, "we got it!"  My, my...it contained an IV pole, 2 small IV bags of my antibiotics, a dressing change kit, lots of alcohol wipes, extension set to make my PICC line to where I can reach it with both hands, Saline flushes, and a styrofoam cooler.  She hooks me up to my antibiotic then says this is for you to take home.  Oh joy, we have the Camry packed with luggage, clothes, insulated bag coolers with TPN, more clothes, food, the back is packed!!! Not to include, the inside with 2 adults and 3 kiddos.   My sweet honey was able to make room and get it all in.

Just as I had finished up the meds through the PICC line, my GI doctor came back in to say goodbye.  He didn't need to do that nor we expecting to see him again , but by him coming thru before leaving allowed both Shane and I to finish a few questions we had for him.  We got to the car sometime well after 5.

We stopped for supper and a few breaks and made it to the hotel in Elkhart, IN late that night.   We slept in a bit Saturday before driving in rain the whole way home.  Thankful for safe trip there and home!

Big shout out to my sweet Husband and 3 precious kids!!  Considering all the running around the hospital buildings they had to do running here there and everywhere.  Also all the sitting they had to endure waiting...patiently.   They did an AWESOME job!!!!!   The kids did really good for all the walking they did and kept up with us the whole time.   They enjoyed all the passages they got to go thru, whether it was a sky walk or  a tunnel,  they enjoyed it.  Thankful for my family that God has blessed me with and so glad to be home and be with them.

Love you and thank you for all your prayers.

-Jamie