Tuesday, January 7, 2014

2014- It's here! :)

 It's crazy to know that we are already in 2014!  Time seems to be flying by too quickly!  I have fallen behind on my updates and trying to play catch up.  I did have a post typed out and ready to go back in October, but we had issues with our internet so it never got posted.  I did post it back on January 1st so I wasn't having to do so much backtracking. :)

I think I'll try to pick up the pieces of some of our happenings from November and December.:)  We took a trip at Thanksgiving time to Texas to be with Shane's parents.  We had a good trip there and back but I can't say it was warm while we were there. :(  On one of the days we were there, they had freezing rain.  We had the chance to drive downtown Dallas and see the beautiful Christmas lights.  We all had a wonderful time together for Thanksgiving.  So many things to be thankful for this year!!  God is so good to us!  Blessed beyond measure!   I am so thankful  for the small and simple things and for that which is big too !  To God be the glory for what He has done and is going to do!

December was a little busy, but oh how I enjoyed it!! Last year I was in the hospital for 2 stays for about a week each time and then sent home at the last of December to go home and pack for Cleveland and have a week of hospitalization there.  Needless to say I wasn't able to enjoy Christmas as I wanted to!  I enjoyed being able to do a little shopping and be able to pick out a few gifts this year though.  I sort of dreaded being able to decorate knowing with the flood back in May took a lot of my decor....but in pulling out the 2 rubbermaids we found our ornaments and some of our decor.  I was so excited to know that I still had some decor that I was able to salvage and use. :)  I enjoy sitting in a room glowing in lights and listening to Christmas music.  I am so thankful that as a family we know the true meaning of Christmas and that it's about the presents but is about His Presence.  I enjoyed being with my family and friends and soaking all the true joy of Christmas.

I took the kids up to the local hospital OB department Friday afternoon to let them see the room they were born in and that we stayed in afterwards.  Neat to be able to show them the nursery and the scale to weight them, and to see the room that Matthew and Kailey had to be in after discovering they had breathing issues.  It was neat to introduce them to some of the nurses they had.   The kids enjoyed it, along with the cake, punch, baby shirts, and drinking cups. They also had all the baby albums from the pics they take available to look at.  They had fun looking up their pictures of themselves.  Sad to see the OB department close down. It was neat being able to walk down memory lane with them and let some of the nurses see just how grown our children already are.

Enjoying being inside and keeping toasty warm while its freezing cold outside.  They cancelled school for 2 days and its been nice to have all of the kiddos all together before routines all begin again.:)  I am thankful for a warm home!!  Enjoyed the extra time to play a few games with them also.  It's been nice not having to bundle up and brave the brutal cold weather!!:) I know we are a ways from spring time, but I am ready for some warmer weather to come.

As I think upon 2013,  there are some lessons I have learned through it and has opened my eyes to some goals I would like to reach this year for myself and for my family.  There were some rough times but God was with us every step of the way whether great or small.  I am so grateful for His love for me and for His blessings.  I don't want to fail to give Him the glory for all that He has done.  I want to be a vessel that He can use.  I am believing Him for some great things for 2014!  

Praying that you all have a wonderful New Year!  Take time to look at the blessings of God each new day!  If you have to keep a tablet and write it down, it's neat to look back upon.  Rejoicing in those things that are both great and small.  May you heart be full. Can't help but think of the song..."Count your blessings name them one by one, count your blessings see what God has done, Count your blessings name them one by one, count your many blessings see what God has done."  Thank you for your cards,emails, text, support, hugs, love, and most of all PRAYERS!  I am a very blessed person!!!!

Love- Jamie

Wednesday, January 1, 2014

Lots of catching up to do...

Not exactly sure where to begin...it's been so long.  I am sorry for not doing an update sooner.

Wow, a lot has happened since my last post!  I'll do my best to give you a brief summary of what we have done since July, or at least try to catch you up a bit. In August, we took a trip to Texas.  Had a fun and relaxing time with Shane's parents,Uncle and Aunt, and cousins.  Matthew got a real pair of cowboy boots.  He looks like a  pretty handsome lil feller in them.   We came back home with our running shoes on!  The kids started school a week after we got home so we had our mad dash of fighting thru the isles of getting school supplies.:)

Matthew is in 3rd grade, and is  having a good time.  His favorite subject hasn't changed since Kindergarten-P.E.  He is every bit a boy and loves being outside and playing.  He enjoys any bug, spider, cricket,praying mantis, lizards, frogs...and the list is still growing.  I wouldn't want it any other way. :)  The girls started a few days later than Matthew.  It is a  big adjustment for  our Fourth grader-Kailey with it being her first year at home, but she is doing well and keeping up with her studies.  She does miss her classmates, but we're going work on writing letters to help keep in touch  a bit. Kelsey is our Seventh grader and doing really well with her studies.  Seventh grade!!! Unbelievable !!! They are learning to work as a team and help do little things around the house.:)

Shane is keeping busy with his car detailing.  We thank the Lord for His provisions and His many blessing! He was in the Homestead parade with a before and after car and then I drove the Suburban. It was lots of fun!!!  If you didn't  get to see it you missed a good one!!  Couldn't believe the huge crowd of people that were lining the streets.  We went thru over a hundred  dollars worth of candy and had a few pieces to throw by the time we got to Peru and Main Street.  You can check it out at his facebook site...www.facebook.com/shanesshineshop

Kailey had asked last year to go in a helicopter ride. The line last year by evening time was long and it was getting dark so we asked her to wait till this year and go up in the afternoon and see the town from the sky.  She went up with Shane and a friend of ours from church.  She was full of smiles when she got in and was in the front with the pilot .  When they landed and she got out she was still grinning and said that was fun and I want to do it next year, too!  Matthew said he wants to try it next year, too.  Kelsey has no desire to be up in the air and is very content to just watch them.  Shane said it was really neat and not bad being up in the air.  The pilot circled around the house a few times to let them get a good view of it.  Shane took a few pictures in the air and it's so neat to see the corn fields and some aerial views of the town and our neighborhood and house.  She had a birthday and turned the big 10!!  I need to put bricks on these kids because they are all growing way too quick!!

Iv'e had a few doctor appointments to say the least since July.  I have finished the 39 unit of blood since February.  That is a lot of blood and I am grateful for those who are blood donors!  I am evermore grateful for the blood of Our Precious Savior who died for me at calvary.  I have been to Cleveland and they are changing out the TPN to try to help maintain my weight.  They want me to keep seeing a cardiologist for the tachycardia and the hematologist for the blood issue. Will continue to see them every 3 months  for a check up.  Back in September I went to get out of bed and when I stood up I had pain in the ball of my foot.  I babied it and walked on it diffrently trying to help it along.  It wasn't any better so I saw the Dr for it and he thought that maybe it was gout so he treated me for it and had me do a blood test.  It came back negative for gout and made a refferal to see a foot specialist just to make sure all was well.  I got in that week and they did 3 xrays of the foot and it showed that the ball of my foot.  He came in and said "so you're treating your foot for gout?"  I said yes and he said it's a fracture and a chipped bone.  He put it in a cast and I just had it reevaluated this week.  They took the cast off and x-rayed it and there is no change or sign of healing so back in the cast for 3 more weeks still no weight bearing.  I never have used crutches before-I have more sympathy for those who use them.  They take skill and endurance.  Maybe with me using them for 3 more weeks I'll be a pro at them:) Ha!  There's no racing using them.  I have been able to keep Shane and the kids laughing time to time as I lean into a wall to catch myself from falling.  MY MY MY!! LOL!! .:)

Fall  has always been my favorite season.   I don't enjoy the chill in the air, but I do like wearing sweaters,  being cuddled in blankets, the smell of candy corn, caramel apples, pumpkin bars, apple crisp, roasted marshmallows, hot cocoa, maple nut goodies, & hot cider.  Listening to the leaves crunch as you step on them. Watching the trees change in color from front porch or going on a ride out in the country enjoying all beauty that fall brings.   We enjoyed the quick trip to Cleveland and seeing all the trees in color there and back.:)  I didn't like the snow that we had on Tuesday.  It was just enough to cover the ground but it sure was cold!  I'm not ready for the white stuff to be coming quite this soon!  Hope this doesn't mean we are in for a bad winter.


Saturday, July 20, 2013

An awaited update:)

It's been a crazy busy summer to say the least!! SLOW DOWN SUMMER!  School supplies are on the shelves and ready to go...but they can wait a bit longer please-I'm not ready to end our Summer. There is still a trip to Texas before school starts and some things to do with the kiddos.  Time seems to just be flying by a bit too quick!  We're sure having fun though!:)

The hickman line is in place and healing well.:)  It was a rough day! The first plan was set and ready and when the surgeon came in and discovered that the PICC had been changed.  It was in the left arm instead of right-His plan was to place the hickman on the left to give the right side a break after having it removed from there.  Since we were using the PICC for the IV meds to help knock me out for the surgery we had to do an IV in my hand.  The nurse got it in and another plan changed-instead of knocking me out completely it was decided to use partial sedation to where I would not be completely awake.  I was a bit hesitant just due to times past waking up through the procedures. Well...I was taken back to surgery, remember getting the meds and was told I was in a good sleep.  At some point I started hitting with my hand that had the IV in it and when they got my hand the IV got messed up.  I don't remember that-I do vividly recall awakening to pain on my left chest where the Dr was working and countless pokes and sticks for the IV.  NOT FUN!  I had a sweet nurse at my head, wiping my tears that were streaming down my face, trying to keep me calm as I could feel the Dr stitching me.  They were not able to give me any meds due to no IV.  They had tried 4-5 attempts and my veins were not cooperating so..no IV was placed.   I was just happy to come home and crawl in my bed and try to sleep off the pain and be LEFT ALONE.:)   It wasn't anyone's fault, but I think it's just best to be all the way out from now on.  I have alot of allergies to meds and don't want any more.  Thankful that God's hand was on me thru the surgery and all is good and well with the line.:)

I had an appointment with the hematologist yesterday.  I have a low hemaglobin so I recieved 2 units of blood after my appointment.  The plan is to get iron infusions for the next 2 weeks and see her in 4 weeks.  If  the levels are not where she would like them, we'll discuss doing another bone marrow biopsy again.  

Trying to stay cool in this heat.   I love the heat but my body doesn't handle it too well.  With Shane doing car detailing I've been trying to keep the house stocked with powerade and gatorade to drink.  The kids haven't been out too long with as hot as it's been.  They did make it to the library for the Summer Reading Program activites.  The helicopter came in last Friday and they loved watching it come in and leave.  We've enjoyed and are thankful for the programs they offer the kids.

Wishing you all a wonderful weekend!  I can't express my gratitude for all your prayers!  Thank you!

Love-
Jamie










Tuesday, July 9, 2013

Clearance for surgery :)

All is well for the Hickman to be placed back into the chest tomorrow.  I have to be there at 7:30 in the morning and go in at 9:30 for the Leonard Hickman to be placed.  Antibiotic is done and no infection in the bloodstream.  Yea!!!  I am ready to have this PICC line out of the arm and get back to some normalcy of things.  It just must be where it is located that it is so tender.  I can't complain too much cuz things could be much worse.  I think my arms and hands have had enough things done to them the past 4 weeks between 2 PICC lines and too many IV's.  Thankful though that I still have access to them and don't have to use the jugular vein.  

God is so good and I am thankful for the Dr's and nurses that He has placed before me.  I pray for them daily that God would guide them and help them.  

Getting ready to call it a night since the morning will come early for me.  For me, 5:30  is when I'm getting into a good sleep.  Please keep me in prayer tomorrow.  I pray that I can be a blessing to someone thru all of this.  God has blessed me beyond measure!  I'll try to update the blog on Thursday.  Hope you all have a wonderful Wednesday.

Love-

Jamie

Monday, July 1, 2013

We made it HOME:)

Sorry for the lack of updates.  It's so good to be back home!  We made it in on Saturday afternoon safe and sound!  Thankful for a safe trip there and back.  We ran into traffic on the way home.  In Peru, there was a single vehicle accident, but thankful for God's protecting hand!!

Well.. where to begin for Friday?  We got up at 6:30am, after going to bed after 1am from the ER.:)  Got ready and packed.  Shane and Matthew loaded the car up and the girls and I headed down to the breakfast area.  They ate, then we all headed out for the doctor appointment with the GI doctor.  He was concerned and seemed for certain that I was facing a blood clot in the right arm of where the PICC line was.  I gave him a hug and said let's just take this step by step and that we'd get thru this.  So, most of the appointment was rushed to get me over to another area of the campus where they were able to do a vascular ultrasound.  Once we were finished with that, we rushed back over to the office where my appointment was to get the results and see what the next step would be.  They came out and said it was cleared for no clot.  That was a good thing!!!!  Thank you, Lord!!:)

They were able to get me scheduled with the PICC team  to change out the PICC line since this one was obviously leaking.  Bad news was...they couldn't get me in until 3 pm.

We left the GI office around noon, found me some chicken broth and Shane and the kids had McDonald's for lunch.  We sat in the main hospital lobby waiting area and there was a young doctor at the piano playing.  What an enjoyment it was!  We watched a lot of people come and go.

The Hematologist I saw Thursday came up to me and complimented us on how beautiful our family is!  He also said he was waiting on a bit more of the blood work to come thru, but what he had back didn't show anything significant.  He said to call his office this week and go over it all.

Around 2:30, we headed to the Dialysis area because that was the only procedure room available for them to use for the PICC insertion.  It took about an hour to get it all done, then we had to race over to the Endoscopy area.  The GI doctor said no more Vancomyacin with the reaction I had in the ER.  He said the next time I would have it would be worse so no more vanco for this girl.  He wanted me to try Cubicin before leaving and be monitored for any reactions.  The Endoscopy area was able to keep me for that, so we got there and was ushered back  to a bed only to find out they were waiting for the anitbiotic to get there from another pharmacy that was not theirs.:) :)    We waited patiently and they allowed Shane and the kids to come back with me since it was the end of their day.  About 15 minutes or so passed and my nurse came towards me carrying a big box saying, "we got it!"  My, my...it contained an IV pole, 2 small IV bags of my antibiotics, a dressing change kit, lots of alcohol wipes, extension set to make my PICC line to where I can reach it with both hands, Saline flushes, and a styrofoam cooler.  She hooks me up to my antibiotic then says this is for you to take home.  Oh joy, we have the Camry packed with luggage, clothes, insulated bag coolers with TPN, more clothes, food, the back is packed!!! Not to include, the inside with 2 adults and 3 kiddos.   My sweet honey was able to make room and get it all in.

Just as I had finished up the meds through the PICC line, my GI doctor came back in to say goodbye.  He didn't need to do that nor we expecting to see him again , but by him coming thru before leaving allowed both Shane and I to finish a few questions we had for him.  We got to the car sometime well after 5.

We stopped for supper and a few breaks and made it to the hotel in Elkhart, IN late that night.   We slept in a bit Saturday before driving in rain the whole way home.  Thankful for safe trip there and home!

Big shout out to my sweet Husband and 3 precious kids!!  Considering all the running around the hospital buildings they had to do running here there and everywhere.  Also all the sitting they had to endure waiting...patiently.   They did an AWESOME job!!!!!   The kids did really good for all the walking they did and kept up with us the whole time.   They enjoyed all the passages they got to go thru, whether it was a sky walk or  a tunnel,  they enjoyed it.  Thankful for my family that God has blessed me with and so glad to be home and be with them.

Love you and thank you for all your prayers.

-Jamie































Thursday, June 27, 2013

Good Day With The Hematologist Dr.

Quick, but short update.  All went good at the appointment.  Had labs done and he is going to talk with the GI doctor regarding some suggestions.  Very nice doctor and staff.  Actually, everyone here has been so nice.:)  That makes it better with not knowing anyone.  I am having some problems with the PICC line though.  Long story short-we ended up in the ER.  I am back at the hotel and so glad I didn't have to stay over!!  We will have it addressed with the PICC team, after the GI appointment tomorrow morning.  I will do a better update hopefully tomorrow, but for now it off to sleep for me.

Luv Ya-
Jamie:)

Wednesday, June 26, 2013

We've arrived to Cleveland OH

We have arrived safe and sound to Cleveland, Ohio.  :)  No melt downs or problems on the way here with 3 kids in the back seat.:)  It wasn't too bad of a ride driving straight thru, but these bones are ready for BED. :)  Thankful for an uneventful trip here and for God's mighty hand of protection upon us as we traveled.

My appointment with the Hematologist is at 9 in the morning.  I was thinking it was 8, but grateful that it is an hour later.  It will give us a little extra time to get ready, eat breakfast, and be on our way to the appointment.

I'll try to update the blog tomorrow evening sometime and give a heads up on how things are going.  For now, it's time to get some rest for a BIG day tomorrow.

Luv ya-
Jamie